Research and clinical trials can only work hand in hand with you. So we thank you in advance for all the support you want to provide to us, and to research; or maybe you are already helping-out. We hope that our research can give you back, as much as possible.
Principle investigator, founder and CEO of the SphinCS GmbH & SphinCS Lyso non-profit UG. Dr. Mengel has dedicated himself to research in the field of LSDs, and has already significantly contributed to the advancement of this field of study.
Prof. Dr. Beck has a broad scientific background in: medicine, paediatrics, biochemistry and human genetics. He has been influential internationally in progressing the field of study of LSDs. At SphinCS he works as a consultant.
Petra Kleinhans is a registered specialist paediatric nurse and has been working in the field of lysosomal storage disorders for over 16 years. During this time, she has developed her expertise in phase I-IV clinical trials. In addition to study coordination and study management, project development is one of her main activities.
At the Hochheim site, the co-founder of SphinCS organises studies of rare to ultra-rare diseases.
Mrs. Dr. Amraoui has 15 years of expertise in the diagnosis, care and treatment of patients with lysosomal storage disorders, which she acquired during her work as a specialist in paediatrics and adolescent medicine at the University Medical Center Mainz. Ms. Dr. Amraoui participated as an investigator in more than 30 clinical trials and was instrumental in the research of various lysosomal storage disorders and the approval of various drugs. In October 2019 Dr. Amraoui has joined the SphinCS team as a highly experienced investigator. In addition to leading and conduction of clinical trials, her activities include project development.
After completing her medicine study at the Mexican University Michoacan of Saint Nicholas of Hidalgo, Ms. Rios worked as an emergency doctor. She joined the SphinCS team in 2020.
Loreen Gramsch is a certified pediatric nurse and completed a 1/2 year training as a study assistant in the year 2011. In 2009 she worked as a study coordinator in phase I-IV in clinical trials. In the last 4 years, she has acquired a high level of professional competence in the field of lysosomal memory diseases.
In April 2020, Ms. Gramsch has joined the SphinCS team with her expertise as a study coordinator. In addition to the coordination and conduct of clinical trials, their activities include project development.
Dr. Schädlich started her education at the Paediatric Nursing School Johannes-Gutenberg Mainz. She is a qualified medical doctor involved in clinical research since 2016.
At present we have no literature available.